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juillet 08, 2005
Some Answers (Maybe)
Well her upper GI test was abnormal and showed that her esophagus is being constricted by 50%, before her surgery it was 70%, so basically something is wrong. Most likely she has some scar tissue that has reformed the ring around her esophagus and trachea (food and wind pipes). She will definitely be getting a cardiac MRI that will best visualize what the heck is going on in there. And, unfortunately, she will need surgery again to correct whatever it is. Same surgery, same place, different time (sigh). It's a relief to have some answers, but I'm nervous about getting it all taken care of before Aug. 4th when I'm going to France for a week [ofcourse, non-refundable, non-changeable ticket with no trip insurance b/c I bought it ultra cheap, but still very expensive, it's just cheaper than the 1300 it cost normally, I do believe that I am supposed to go though, (it's to see a close friend that has had a baby), because I literally bought the ticket just a few hours before this happened, and it was really a miracle that I was able to get it at the price I did]. I'm honestly most nervous about that because I'll be even more scared leaving her with this issue unresolved (I'd be mess with her 100% healthy as it is). So, please pray that every thing can be fixed soon, that we won't have to wait long for the MRI and that if need be we can get into surgery really soon as well (the nice part is that once the surgery is done we'll probably only be in the hospital for two nights, so long as there's no complications, it's nice how quickly kids bounce back). And please pray that we will be able to keep her on a soft/puree diet without any complaints or issues from her end. She needs to be happy with mashed potatoes, grits, oatmeal, and yogurt for an extended period. Please let me know if you have any soft food ideas/recipes. Thanks.
Posted by carriec at juillet 8, 2005 03:21 PM
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